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FEEMH and ESPKU organize in the next 27, 28, 29 and 30 October in Seville the XXXVI European Conference of PKU. The conference will take place at the Silken Al-Andalus Hotel and host more than 200 families from all corners of Europe, as well as the main specialists on phenylcetonuria
La fenilcetonuria or PKU It was the first metabolic disease that was discovered and for which effective treatment could be found. Since its discovery and identification at the beginning of the last century, the scientific community, as well as affected, families, governments and pharmaceutical industry have worked together to improve the quality of life of those affected. What was a disease that caused serious sequelae and disscapcities has become, in those countries where effective treatments exist, a disease that allows a full and fully integrated life.
Unfortunately, this is not the case in all countries of Europe or the world. In some countries in Eastern Europe, as well as Hispanic America, there are no early detection programs, or if they exist, there are no effective treatments. These treatments consist of low-protein restrictive diets and dietary supplements, which are costly and are not always covered by national health systems.
In Spain, the fenilcetonuria began to be written in the year 1.968 thanks to the impulse of Don Federico Mayor Zaragoza, and Dr. Magdalena Ugarte, at the University of Granada. From then on, the screening and early detection programme is extended to other regions of Spain, as well as improving treatments and therapies to improve the quality of life of those affected. Valencia Life | Live Like a Valencia Local
However, there are still many challenges facing the community of phenylchoneums in Spain, Europe and the rest of the world. The access to low protein foods at reasonable prices, new treatments or drugs, or the mere detection of the disease, they are still challenges to accomplish in many cases. On the other hand, the cruel war in Ukraine has revealed the complexity of taking the treatment of this type of disease. Low-protein logistics chains, and their dietary formulas have been affected by this serious situation.
For this reason, ESPKU, European Society for PKU and FEEMH, Spanish Federation of Hereditary Metabolic Diseases will organize, the next on 27, 28, 29 and 30 October in Seville, the XXXVI European PKU Conference that will bring together more than 50 professionals, more than 200 families and numerous pharmaceutical companies to address the present and future challenges of this pathology. All information about the conference can be found in the ESPKU website.
FEEMH and ESPKU organize in Seville the XXXVI European PKU Conference
FEEMH and ESPKU organize in the next 27, 28, 29 and 30 October in Seville the XXXVI European Conference of PKU. The conference will take place at the Silken Al
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2023-04-11
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